Understanding Epilepsy
Inside the brain
Risks & Causes
Diagnosis
Treatment
Talk to your Specialist
FAQs
Good communication with your neurologist or epileptologist is important in the goal to achieving seizure freedom and living a full life.

We want to help you get the conversation started and help you take an active role. Because there are many epilepsy treatments to choose from, your neurologist or epileptologist needs as much information as possible to recommend the best treatment options. Working together to identify side effects and diagnose seizure types and patterns could make a significant difference in your quality of life.

What Is an Epileptologist?
Epileptologists, while not numerous, are available to you, as are other specialists trained in neurology or neurosurgery. While an epileptologist is often an excellent choice, a good neurologist in your area can also offer high-quality epilepsy treatment.

How do I find an epileptologist?
Ask your family practitioner or general neurologist for a referral.

Complete the following questionnaire, print it out (note that your answers will not be saved and will disappear when you log off the website), and discuss this information with your neurologist or epileptologist. The answers you provide can help your neurologist recommend the best treatment available.


 Click here to download questionnaire


Your Medication Yes No  
Are you happy with your current epilepsy treatment?  
Are you still experiencing seizures?  
Are you taking a birth control pill?  

What antiepileptic medications are you using?
     


Your Seizures
How frequent are your seizures?
     
What types of seizures do you have?
     


Self-Examination
All medications have side effects. Keeping track of yours can help your neurologist or epileptologist provide better care and treatment.
Let your neurologist know if you have experienced any of the following side effects since your last visit:

  Yes No  
Acne  
Change in hair growth or loss  
Change in hair growth or loss  
Depression  
Difficulty concentrating  
Difficulty finding the right word  
Digestive problems  
Double or blurred vision  
Fatigue  
Feelings of hopelessness  
Headache and drowsiness  
Hopelessness  
Inability to sleep  
Irritability  
Memory loss  
Nausea  
Nervousness/agitation  
Psychotic episodes  
Restlessness  
Tremors  
Trouble with mouth, teeth, or gums  
Uncontrolled body movement  
Vertigo/dizziness  
Weight gain or loss  


It is also important to notify your neurologist of any significant physical changes such as:

  Yes No  
Beginning puberty  
Going through menopause  
Irregular menstruation  
Planning to become or becoming pregnant