If you find that you continue to experience seizures while taking your medication(s), you should ask the following questions:
- Is my diagnosis correct? Some seizures are caused by medical concerns other than epilepsy.
- Do we know what types of seizures I’m having? Since certain medications work better for specific seizure types, it’s important to know your seizure types. Video EEG telemetry can be used to help identify seizure types.
- Does my medicine have side effects that prevent me from taking my medicine at the correct dose?
- Is my medicine affordable and available? If not, this could prevent you from taking your medication at the correct dose.
- Am I taking my medication according to the schedule provided by my health care provider? Medicines only work when they are taken as prescribed by your health care provider, on a regular basis.
Ask for a referral to an epilepsy specialist to assess your treatment and seizures if you:
- Have been taking your seizure medications at the correct doses for a sufficient amount of time
- Have tried at least two seizure medications indicated for your seizure type
- Have been taking your medicines regularly
- Experience side effects that prevent you from taking your medication(s) at the prescribed dose
If your case is particularly complex to manage, you might be referred to an epileptologist. Epileptologists are neurologists with special training in epilepsy diagnosis and treatment. Epileptologists are usually only available in teaching hospitals and you may have to travel some distance to access one depending on where you live. You and your neurologist can decide if you should see an epileptologist.
You might be seen by an epileptologist if you are pregnant, have epilepsy that can’t be treated with medication, are a candidate for brain surgery to treat seizures, or require diet therapy for epilepsy.